Thank you for your consideration in supporting the 2024 Cure SMA Singer Songwriter Evening of Hope!

What is Spinal Muscular Atrophy?

Spinal muscular atrophy (SMA) is a debilitating, genetic neuromuscular disease. It is the leading genetic cause of death of children under the age of two. SMA destroys the nerves controlling voluntary muscle movement, which affects crawling, walking, head and neck control, and even swallowing. One in every 11,000 babies is born with the disease and one in every 50 people (that’s 8 million Americans) carries the gene that causes SMA. SMA can strike anyone of any race, age or gender, yet many do not know that it exists until it strikes their own family. There is no cure – but we are asking you to help us change that.

What is Cure SMA?

Cure SMA is the leading organization funding SMA research. Cure SMA has invested over $70 million in research programs and has committed over $1.1 million in new research funding this year alone. Through this research the gene mutation that causes SMA was discovered. Cure SMA funds basic research to learn more about this mutation, and drug discovery programs to find potential treatments and cures. The organization also funds critical clinical care studies to help keep patients healthy while we wait for a research breakthrough.

How can you help?

There’s great reason for hope, but our work is not done. Thanks to the dedication of our families, the generosity of our supporters, and the ingenuity of our research partners, we have reached a new phase in our mission to develop a treatment and cure for SMA. Now, more than ever, we stand ready to shape a future that will change lives and give new hope to all those who are affected by SMA, and we can’t do it without you. Please contact us today if you are interested in becoming a sponsor of our upcoming event or donating to our silent auction.