ABOUT AVA AND HAILEY 

Ava and Hailey are two of the strongest little girls you will meet. They are happy, smart and beautiful and will inevitably brighten up your day if you’re lucky enough to spend time with them. Both have been diagnosed with Spinal Muscular Atrophy Type 1, the most severe form of this genetic disease.

We are very lucky that both Ava and Hailey were born in a time when there are three FDA approved treatments available to fight their diagnosis. While there is no cure yet, these treatments will help Ava & Hailey pass the average life expectancy for this disease and lead a fulfilled life.

As lucky as we feel, this opportunity wouldn’t be available without the efforts of Cure SMA and the community that supports them. While the fight is a hard one, Ava always does it with a smile, and is the perfect example for Hailey as she begins her lifelong fight against SMA.

We golf to ensure Ava, Hailey and everyone with SMA, can live the life they deserve.